Lost to Lewy
by Rick Albertson (Author)
5.0 5.0 out of 5 stars (1)
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Lewy Body Dementia robbed me of my wife, Nancy, my sons of their mother, my grandchildren of their grandmother, her brothers and sisters of their sibling, acquaintances everywhere of a kind, intelligent, sensitive, caring friend. She was a gentle person who cared little about anything, including her health, other than putting the needs of others before herself. She lived in the moment, content and happy, relishing opportunities to listen to people, to talk, to encourage. Lewy Body Dementia stole her love of communicating. She gradually lost the ability to express herself through words, and soon thereafter could no longer understand what was being said to her.
LOST TO LEWY: Nancy’s Nine Years is a unique book, perhaps the only one of its kind, as it follows my wife's nine year struggle with Lewy Body Dementia month by month, sometimes day by day, through the ordeal that took her life at the age of 67. The book records Nancy's growing list of symptoms, test results, anecdotes, and my daily observations as it documents the progressive impact of the disease on her and our family and caregivers. The book is also a love story, albeit a sad one. It is a retelling of the difficult times in which I as her primary caregiver struggled, too, a husband with no experience caregiving and little understanding of what was to come.
This book’s recounting of Nancy’s struggles is meant to serve as a guide for other families with loved ones suffering from this awful disease. Reading the enclosed excerpts will give you a good idea of what your loved one is going through today and where she’ll be tomorrow. That’s the purpose of this book: to guide families by helping them to understand a timeline of the disease’s typical progression, thereby fulfilling what Nancy said was her last goal in life: to help other people in whatever way she can.
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Print length
211 pages
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