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The Long Hello: Memory, My Mother, and Me : Borrie, Cathie: Amazon.com.au: Books

The Long Hello: Memory, My Mother, and Me : Borrie, Cathie: Amazon.com.au: Books








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Cathie Borrie



The Long Hello: Memory, My Mother, and Me
by Cathie Borrie (Author) Format: Hardcover
3.7 3.7 out of 5 stars (311)

A powerful, ground-shifting account of caring for a parent with Alzheimer's about which Maya Angelou exclaimed, Joy!

Since Cathie Borrie delivered her keynote performance at the World Alzheimer's Day event sponsored by the Community and Access Programs of the Museum of Modern Art, her self-published manuscript has won rapturous praise from noted writers and Alzheimer's experts alike, from Maya Angelou, Lisa Genova, and Molly Peacock to Dr. Bill Thomas, Jed A. Levine of the Alzheimer's Association, NYC, and Meryl Comer of the Geoffrey Beene Foundation Alzheimer's Initiative. Now it is available to the general public for the first time in a trade edition.

The Long Hello distills the seven years the author spent caring for her mother into a page-turning memoir that offers insight into the altering world of the dementia mind. During that time, Borrie recorded brief conversations she had with her mother that revealed the transformations within--and sometimes yielded an almost Zenlike poetry. She includes selections from them in chapters about her experience that are as evocative as diary entries. Her mother was the emotional pillar and sometime breadwinner in a home touched by a birth father's alcoholism, a brother's early death, divorce, and a stepfather's remoteness. In Borrie's spare prose, her mother's story becomes a family's story as well a deeply loving portrait that embraces life.

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Review
A sparse yet deeply affecting, poetic story of love and devotion . . . revealing moments of clarity, absurdity, wisdom, and connection that pierce and heal the heart. --Lisa Genova
Joy! --Maya Angelou
Cathie Borrie is a great writer, and her exploration of life with Alzheimer's is deep, rich, nuanced, and soulful. --Dr. Bill Thomas, author of Second Wind
The Long Hello is a graceful dance between mother and daughter through the ever-changing rhythms of Alzheimer's disease. Beautiful and profound in its telling, this story reveals the depth of poetry and creativity that the changing brain can muster along its journey. One of my favorite books on the topic! --G. Allen Power, MD, author of Dementia Beyond Drugs and Dementia Beyond Disease
Caregivers will recognize themselves both in the mix of light moments of connection, and in the darker, unspeakable, intolerable emotions. . . . Borrie finds poetry in her mother's language, and teaches us all important lessons about the human experience of caring. . . A beautifully written meditation on memory loss, suffering, hope, and love. --Jed A. Levine, Executive Vice President and Director, Programs and Services, Alzheimer's Association, New York City Chapter
The Long Hello is an exceptional book about caring for people with dementia that offers a paradigm-shifting approach to maintaining relationship. Cathie Borrie enters deeply into her mother's world, and a poetic dialogue of mutual love and respect is the result. Should be required reading for everyone caring for people with dementia, and included in the syllabus of healthcare professionals learning how to do so. --Marc Wortmann, Executive Director, Alzheimer's Disease International
Cathie Borrie has learned to respect the wisdom in her mother's free associations. The Long Hello will touch deeply all who love. --Naomi Feil, author of Validation: The Feil Method and The Validation Breakthrough and founder and director in chief of the Validation Training Institute
Cathie's book, The Long Hello, is one of the finest examples currently available illustrating the kind of dignity-promoting, compassionate care which should be the heart and soul of the culture change movement. The warmth of her story combats the cold realities of ageism and negative stigma that have characterized the Alzheimer's and dementia world for too long. . . . I believe that Cathie's book should be made available to all caregivers, both lay and professional, as well as policy makers, researchers, and anyone else who advocates for this cause. --Daniel C. Potts, MD, FAAN, Attending Neurologist, Tuscaloosa VA Medical Center, Founder and President, Cognitive Dynamics Foundation, Medical Director, Dementia Dynamics, LLC
The book's highly literary vision of disease is a powerful challenge to more detached clinical observations . . . By approaching a parent's Alzheimer's in the spirit of hello rather than goodbye, Borrie is predisposed to pay attention-yet even then she's astonished at the words that emerge from her mother's mouth, almost as if aging could unlock the imagination and unleash a verbal force held back by logic and rationality. --John Allemang, Globe and Mail
Borrie captures the familiar cadence of repetition and the bizarre, yet touching conversations we share. We must live in their reality if we are to comfort them, and Cathie shows us how it can be done with love. --Meryl Comer, President, Geoffrey Beene Foundation Alzheimer's Initiative; Emmy-award winning reporter, producer, moderator, talk show host; caregiver; and Alzheimer's Association Board Member
Cathie Borrie's groundbreaking lyrical memoir, The Long Hello, utilizes arrestingly poetic prose to create an ideological sea change in the way in which individuals and society at large view the experience of Alzheimer's, shinning new light on the rich emotional and intellectual ways of being that are newly possible in the altering world of the dementia mind. --Francesca Rosenberg, Director, Community and Access Programs, Museum of Modern Art
A moving and amazing breakthrough of a book. --Lynn Jackson, Co-founder of the Dementia Advocacy and Support Network International (DASNI)
Ebullient, feisty, vulnerable, and dumbstruck by the circumstances of her life, Cathie Borrie uses the magical lens of her mother's Alzheimer's disease to examine her role of dutiful daughter. With her theatrical sense of timing. . . and her skill as a poet, Borrie writes a page-turning memoir of a whole family. . . I read this book right straight through, with all the other things I had to do, standing at attention for The Long Hello . . . Miraculously, Borrie both replicates her mother's thinking and used it as a threshold into her own remembering. --Molly Peacock, author of Paradise, Piece by Piece and The Paper Garden: Mrs. Delany Begins Her Life's Work at 72
A masterpiece. . . An absorbing and fascinating account, beautifully written and of value to all engaged in the care of Alzheimer's patients-from care-giving relatives to those providing medical and social services to the ever-growing number of patients. -Dr. D.A. Henderson, Professor of Medicine and Public Health, University of Pittsburgh; and University Distinguished Service Professor and Dean Emeritus, the Johns Hopkins Bloomberg School of Public Health
What Cathie Borrie did for her mother was wonderful. . . . What she has done for readers is inspiring. The actions are matched by the luminous prose. This book is memoir at its best. --Vancouver Sun
The Long Hello is an amazing neo-existentialist vision, profoundly layered with love, death, agony, exquisite language, loneliness, and more love. I was overwhelmed by the filmic, sensuous imagery, the emotional force of such a raw interweaving of past and present. From somewhere (out t)here, Cathie Borrie has created a book of shimmering truth, a narrative of a life lived where we are, and a life lived on "the other side of here." --Christian Xatrec, artist, Director of the Emily Harvey Foundation, NYC
Toward the end, as her mother copes with a brutal cough, Borrie gently touches her chest: Is there enough compassion in there? her mother asks. Yes, Mum, Borrie answers. It's full, beautiful. The same can be said for her daughter's remarkable book. --Anne Kingston, Maclean's
Filled with insights that will be of interest to caregivers and their families. Lyrical and evocative, it is about remembering and forgetting, presence and absence, holding on and letting go. . . . Cathie Borrie is a gifted storyteller, and she has written a memorable book about love and loss. --Jeffery Berman, author and Distinguished Teaching Professor of English at the State University of New York
Cathie Borrie's heart-warming message will have you finding joy as a caregiver--even in your darkest, most difficult times . . . I am very impressed with her ability to touch and inspire others. --Steve Harrison, Radio-TV Interview Report, Million Dollar Author Club
"Cathie Borrie's memoir The Long Hello gives hope to the many people who have a loved one living with memory loss. Her artistic response to being her mother's caregiver is a much-needed model for other caregivers. As the Executive Director and Founder of the Alzheimer's Poetry Project I believe her book and voice would be welcome and needed at conferences on Alzheimer's and related dementia." --Gary Glazner, Executive Director, The Alzheimer's Poetry Project
We are all dancers, whether secret or declared, moving to the ever-changing rhythmic tides and tensions of the human experience. In The Long Hello Cathie Borrie choreographs the changes in her mother's memory into a new way to see and be, illustrating the iridescent and persistent intelligence of the mind and the limitless wonder of our imagination. As dancers must do, she learns to release the choreography of the past and dance new steps to the shifting tune of her mother's journey through Alzheimer's, discovering an unexpected metaphor for her experience in the beauty of bodies in motion, made possible through the ability to love. --Elaine Summers, Fulbright Scholar, MIT Fellow, pioneering choreographer and intermedia artist; original member of the Judson Dance Theater, NYC
A moving, lyrical piece. . . --Michael Bennett, author and professor of English, Long Island University
The Long Hello is an account of Alzheimer's which, to my knowledge, is unique in its ambition and structure. First, because it undercuts current dialogue between mother and daughter with recreated accounts of their past life together. Secondly, because the daughter gives her insights into the seven-year caring process, and, through extracts from recorded conversations, we also gain the mother's perspective. But that is not all: miraculously, both individuals have deeply expressive ways of turning the highs and lows into poetry. The result is not only heartfelt and heartbreaking, but a considerable work of art. --John Killick, poet, Writer-in-Residence at the Dementia Services Development Centre, University of Stirling, UK
Some books simply must exist and this is one of them. In this fable-like memoir we encounter the fierce loyalty of a mother and daughter refusing the isolation of Alzheimer's. Inside their conversations we encounter a unique voice in memoir. The voice of a mother now unfettered by grammar and propriety: a candid, poetic, and surprisingly thought-provoking voice. In turn, we encounter a daughter taking her own liberties to reconstruct the abandoned, dead-ended family stories of which she is becoming the sole survivor. --Betsy Warland, nonfiction writer, poet, essayist, teacher, and editor; Director of The Writer's Studio at Simon Fraser University; author of eleven books of poetry and creative nonfiction, including Breathing the Page: Reading the Act of Writing
I have spent the last day immersed in The Long Hello. I feel fortunate to have had the opportunity to be brought into the remarkable lives portrayed poetically and with raw honesty within these pages. It reminded me that amidst the pain and suffering, loss and grief that surround the experience of caring for a loved one with memory loss, there can still be joy, sustaining connections, deep love, and possibilities for seeing and being in new ways. If only we all had that capacity! --Sherry Dupuis Ph.D., Director, Murray Alzheimer Research and Education Program, Schlegel-UW Research Institute on Aging Faculty of Applied Health Sciences, University of Waterloo
Pitch perfect. The Long Hello is poignant, personal, and in many ways profound. As her story weaves between her life as a young girl being cared for by her mother and her adult life as a caregiver for her mother with Alzheimer's, we see unimagined parallels and witness extraordinarily moving moments in the interactions between mother and daughter. The poetic cadences of their conversations are by turns humorous, unsettling, comforting, and deep; one senses a marvelous dance or an intriguing improvisation unfolding before one's eyes. The author has given us a vivid sense of the frustrations one faces in caring for a person with dementia, but she has also revealed, in and through her mother, a beautifully poetic sensibility and a mind full of wonder, curiosity, and keen observation. --Dr. Charles Morrison, former Dean of Music, Professor of Music Theory, Wilfrid Laurier University, Waterloo, Ontario
Borrie writes beautifully . . . The Long Hello is honest, sensitive and poignant. --Henry Brodaty, Professor of Aging and Mental Health; Past Chair, Alzheimer's Disease International; Director, the Dementia Collaborative Research Centre, University of New South Wales, Australia
A loving, dutiful daughter writes about her desperate confrontation with her mother's Alzheimer's disease. . . . Though she holds degrees in public health and law, her vocation is clearly creative nonfiction. . . . As Borrie presents them, her mother's non sequiturs, surely a badge of Alzheimer's, make a wonderful kind of poetry, mysterious and even witty . . . a short, poignant record of two lives, a moving history of a mother and her child. --Kirkus
This is an excellent addition to public and consumer health library collections because it is not the typical caregiver manual. . . . An intensely intimate, literary tribute to a loving relationship that offers a glimpse into the demented mind. --Library Journal
A deep, moving, glorious book. --The Book Doctors, Huffington Post
About the Author
Cathie Borrie trained as a nurse in Vancouver and holds a Master of Public Health from Johns Hopkins University. She also graduated from the University of Saskatchewan with a degree in law, and she has studied creative writing at Simon Fraser University. She lives in North Vancouver.

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The Long Hello: Memory, My Mother, and Me
The Long Hello: Memory, My Mother, and Me
Product details
Publisher ‏ : ‎ Arcade Publishing
Publication date ‏ : ‎ 19 April 2016
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From other countries

Lorrie Beauchamp
5.0 out of 5 stars but so very few books offer a poignant and personal glimpse into the mind of someone who is by the side of and watching a loved one's brain become unravelled
Reviewed in Canada on 18 May 2018
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When I began my caregiving journey (both parents with dementia/Alzheimer's) three years ago, I was desperate to find something to help cope with the emotions I was processing; there are tons of books to tell you about the condition, the stages, the process, "how to manage", tips and tricks, etc., but so very few books offer a poignant and personal glimpse into the mind of someone who is by the side of and watching a loved one's brain become unravelled. As a writer, I'm also hyperselective about what I read. This book touched my heart with its vivid, heartfelt observations, simple images and lyrical approach to the art of deep loving. Cathie Borrie is an incredibly talented wordsmith and poet; with just a few words, she can evoke a world of sensory joy. I'm pretty sure I would read anything she writes. But it feels like I have found a soul-sister on the pages of this poignant little book, and together the author and I laughed, cried and shook our heads over the acceptance of "what is." I have read many more books on this topic since (they are trending these days, for good reason), but this one remains the most heartfelt and sincere that I have come across yet. Thank you, Cathie Borrie, for helping my heart open.
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Natalie J. Belle MD
5.0 out of 5 stars A Wonderful and Joyous Celebration of Love between Mum and Daughter!
Reviewed in the United States on 8 September 2015
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The Long Hello: Memory, My Mother and Me is an exquisitely-written memoir from author Cathie Borrie that contains amazing and witty insights from Ms. Borrie's Mum; made all the more extraordinary by the fact that Ms. Borrie's Mum is living with Alzheimer's Disease at the time these thoughts were recorded. I find myself reading this wonderful book many times as the joy and love between Mum and daughter are clearly evident in its pages. Also evident in these pages is the clear fact that even though Ms. Borrie's mother, Jo, may have lost her ability to remember recent events, Jo never lost her personality and ability to maintain a loving relationship with her daughter. This book is so very warm, wonderful and full of wisdom from Jo to her daughter Cathie to all of us and serves as a great reminder that while Alzheimer's Disease may take some aspects of our relationships with our loved ones, it can allow us to see and experience so much more richness and love.
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Carol Edwards
5.0 out of 5 stars Tears Of Joy
Reviewed in the United Kingdom on 27 May 2019
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When this book arrived I thought of my is this all it is, very small book with few pages. The poetry was exquisite and I loved the book. Read it the first time in one sitting, will read again and again, a must for anyone who knows or cares for someone with Dementia
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Jazziegirl
4.0 out of 5 stars It is a really good picture of what a typical patient goes through during ...
Reviewed in the United States on 13 February 2017
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The author and her mother live in Canada. Mom has Alzhiemers and the daughter, Cathie records on paper and tape conversations during her years of care giving and then puts it down in book form. It is a really good picture of what a typical patient goes through during the process. Both of my parents died of Alzheimers and I was their care giver. Cathie writes some of her thoughts about that side of things and I could relate to it completely. This is a very quick read but it is a profound documentation of this disease.
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CAROL WATERMAN
4.0 out of 5 stars http: //www. amazon. ca/gp/product/1476792518?
Reviewed in Canada on 9 November 2015
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slow reader
3.0 out of 5 stars Sad story.
Reviewed in the United States on 1 February 2021
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Sad story. Hard to read. I found writing style a little weird, but this could be the nature of trying to describe dementia.
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RW
3.0 out of 5 stars Good So Far
Reviewed in Canada on 20 April 2015
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I am enjoying it so far. I will be back when I'm finished
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Carly
5.0 out of 5 stars Five Stars
Reviewed in Canada on 20 May 2016
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A touching story written in a beautiful prose.
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Amazon Customer
5.0 out of 5 stars The Alzheimer's communication is worth understanding
Reviewed in the United States on 5 February 2021
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The author was the caregiver for her mother, and was so intrigued by her creative alternative expressions she taped some of their conversations. The result is an warm and engaging book, enlightening for those who care about individuals with Alzheimer's. There can be far-reaching realizations unearthed from decades-old experiences, even if the narration might be difficult to follow. The author was kind enough to join our family book club group, and was a wonderful new acquaintance!
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bibliogrammie
4.0 out of 5 stars Worth of a deeper read
Reviewed in the United States on 3 August 2017
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This is a subject to which I have personal connection and the second book of this type I have read. I'm looking for a validation I suppose and while this was well written it did not reach the level I hoped for. If you, however, are caregiver for a parent with dementia or Alzheimer's, this might help you to avoid the things I now look back on and wish I could have handled in a better way
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Elaine Sinclair
1.0 out of 5 stars One Star
Reviewed in Canada on 6 June 2015
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UGH
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P. K Sykes
2.0 out of 5 stars Two stars are generous!
Reviewed in the United States on 25 January 2017
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Two stars for this book are generous! While many of the things the author's mother said are quite lyrical, it is hard to follow, as much of it is "stream of consciousness". It is hard to tell when the mother is speaking and when it is the author. What really troubled me, is that these people have very little in common in most people who are struggling to care for a loved one with Alzheimer's Disease. Thousands, probably hundreds of thousands of people do not have the resources to quit working, keep their home, hire full time care to care for their loved ones frequently eat in restaurants, take dance lessons, etc--without complaining constantly that they just can't take it anymore. While the author obviously adores her mother, she expresses very little concern about what her mother is going through, except during the last few days. She does try to relieve her mother's anxiety by taking her phone calls throughout the day and night. On the positive side, this is a very quick read.
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Susan Scott
5.0 out of 5 stars Five Stars
Reviewed in Canada on 18 April 2015
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Beautifully written, poetic language. I found this book very comforting to read.
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J. Kaye Smith
3.0 out of 5 stars Good story line but could have been better.
Reviewed in the United States on 19 August 2017
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I would have preferred a bit more explanation to the ending of the book. I understood the daughter's mood and the reason for it... but felt I was left hanging in the air with exactly HOW the story came to an end. All in all, it was well written and I found several poignant moments in her interaction with her mother.
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Lyn Guy
5.0 out of 5 stars Five Stars
Reviewed in Canada on 21 February 2016
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An amazing and often funny mother-daughter story
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Nancy D.
1.0 out of 5 stars Very disappointing and depressing
Reviewed in the United States on 10 February 2017
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SPOILER ALERT
I did rate this on my Kindle, but will do so now - a while after finishing it. My husband is in the early stages of Alzheimer's. i read the reviews which included Joy! and I think up lifting, humorous, etc. That sounded good to me, so I bought it and sent a copy to my daughter. We need positive emotions and outlooks.
This book was a huge disappointment to me. I found it very depressing. I should have quit reading it - but I always finish books, it was short, and I was sure the author would end on a positive note. Instead she described in great detail the last moments in the last days of her mother. Anyone who finds this book joyful and uplifting must not be a caregiver of someone they love very much who has this terrifying disease. I am so blessed, as my husband is happy and cheerful and we can still find things to laugh about. Maybe it's me, but I do not find reading about the sad and depressing parts help me to deal with this. I am glad if others do.
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Joyce wirth
4.0 out of 5 stars Heartwrenching then....release
Reviewed in the United States on 26 January 2017
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Why did I choose this? It brought to mind all those strong women I've known. Many of them lingered, very few went quickly. I don't know if I have the strength to care for someone's last days, months/ years, would I be able to do so? Initially I would have said, no, but thinking about the love they gave to me, I changed my answer to a yes.

So sad that she was left to do it all by herself. Very courageous, she herself going at it alone. Memories will always mold us, we endure and we go on. That's what love is.

A quick read for me. Parts reminding me of similar events. Bring some tissues, you'll need them.
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Oona
4.0 out of 5 stars This is a very short book and an easy read, so it would be a good choice ...
Reviewed in the United States on 26 January 2017
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A poignant and personal look at the road ahead of those who take on care giving for a family member with dementia. This is a very short book and an easy read, so it would be a good choice to give to friends and family members who wonder why the care giver is so tired, emotionally drained, and even -- every so often -- uplifted by the experience.
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Misty
4.0 out of 5 stars Sad
Reviewed in the United States on 1 April 2019
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As I read this very thought provoking story, I was taken back to times with my mother and an aunt who suffered similar ends. Although I found this to be very sad, I couldn't stop reading. I enjoyed and hated this book, but will suggest it to my friends.
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Msgale
4.0 out of 5 stars Turkwink
Reviewed in the United States on 23 June 2017
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A must read for anyone who is caring for someone with Alzheimer's. Gives a loving look at a relationship between a mother and her middle aged caregiver daughter. Helped me with my caring for my own 89 year old mother who is just starting her venture into the unknown world of brain disease.
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Lyla Mollard
5.0 out of 5 stars Wonderfully Magical and Filled with a Rare Kindness
Reviewed in the United States on 16 May 2016
Format: HardcoverVerified Purchase
I loved this book. The author takes the cruelty of dementia and turns it inside out creating something truly beautiful. While examining the arduous marathon that is caring for an aging parent she captures the peculiar language revealed through conversations with her mother. The nonsense begins to make sense.

This book is smart, wise and at times magical. Several passages I read over and over and they just kept getting better. She captures both the naive innocence of her child self and the seasoned intelligent adult woman she became.
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CG
1.0 out of 5 stars I wish this book had been free.
Reviewed in the United States on 10 December 2017
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This was the first book I've ever read that I couldn't wait for it to be over and done with. I almost stopped reading it several times because it jumped all over the place and was so incredibly hard to follow. Half the time I couldn't figure out if she was talking about her own thoughts or her mother's ramblings. The jumping from the recent days to her childhood and back was distracting and irritating. I did not enjoy having to constantly try to figure out where the author was going in her narrative. It wasn't informative, other than describing how muddled an Alzheimer's patient's mind gets. That could have been accomplished in one short chapter.

I read for enjoyment or education. This book was neither.
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cglasoe
4.0 out of 5 stars What it must be like...
Reviewed in the United States on 19 July 2017
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This is how I would imagine life to be like taking care of a parent who is fading away. Some of her descriptions in the book are brilliant...her use of words in the descriptions is clever and so spot on.
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Lilybug
3.0 out of 5 stars Actually a 3 is probably a bit high. The ...
Reviewed in the United States on 4 February 2017
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Actually a 3 is probably a bit high. The way the author skipped all over the place was really disconcerting. It was a real downer, as could be expected with the subject but I can't say I would tell anyone to read it.
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Amazon Customer
5.0 out of 5 stars A Beautiful Work of Art
Reviewed in the United States on 4 May 2016
Format: HardcoverVerified Purchase
This book is a beautiful literary work about the human experience and family. I read it in one sitting, unable to put it down. As a work of art it will appeal to anyone with its raw honesty and celebration of family bonds. It is a teacher instructing us that if we learn to listen carefully to those living with dementia; we will find that they are still there and their words can be profound.
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Joanne
3.0 out of 5 stars Very gripping.
Reviewed in the United States on 2 April 2017
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This is a bitter sweet story that shows the challenges of caring for an aging parent with Alzheimer's. It's sad but precious. I'm caring for my Mom right now and understand the mixed feelings of the caregiver.
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Marianne Sciucco
5.0 out of 5 stars A touching insight into Alzheimer's
Reviewed in the United States on 25 March 2017
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Most people think all is lost when they hear "Alzheimer's." In Cathie Borrie's beautiful memoir we learn this is not so, that there are still many happy moments to enjoy, and meaningful memories to be made. This is the story of the love between a mother and daughter, and everything in between. Recommended for those on the Alzheimer's journey, and anyone with an interest in this disease.
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Amazon Customer
4.0 out of 5 stars The Long Hello
Reviewed in the United States on 10 August 2018
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Tragic,poetic& beautiful. It made me cry. As I am old myself, it was quite frightening so I would not recommend it to an older person.
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Carol B. Mattison
3.0 out of 5 stars It was a quick read. I really expected a ...
Reviewed in the United States on 19 July 2017
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It was a quick read . I really expected a little more deapth but did take away some tips for dealingg with Alzheimers.
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Daughter of joy
2.0 out of 5 stars but I would not recommend it to anyone
Reviewed in the United States on 26 January 2017
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This was rather confusing to read. I was never absolutely sure who was speaking or if it was the present or something from the past that the author was remembering. I did finish the book, but I would not recommend it to anyone. I am glad it was short.
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christine m connolly
4.0 out of 5 stars Interesting read on her mother's dying
Reviewed in the United States on 10 May 2017
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It was descriptive, revealing of character and very sad. Possibly inspiring to someone in similar situation, but not for me.
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Lucy Ijams
4.0 out of 5 stars Beautifully written!
Reviewed in the United States on 4 September 2017
Format: HardcoverVerified Purchase
A beautifully written memoir of an unmarried daughter's journey into dementia care for and with her mother.
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amaryllis music studio
3.0 out of 5 stars Three Stars
Reviewed in the United States on 31 January 2017
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Good, but not as goo as Still Alice.
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cathy gaal
2.0 out of 5 stars Confusing
Reviewed in the United States on 10 February 2017
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Confusingly written, goes back & forth between present & past. Conversations confusing--(of course, she is using actual conversations she had with her demented mother, so no wonder they don't make sense--but gets old after a while.).
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Mandi
5.0 out of 5 stars I'm ready to buy my next book!
Reviewed in the United States on 3 December 2022
Format: PaperbackVerified Purchase
Great quality. Quick shipping. I would definitely recommend buying their books.
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Leah Callahan
4.0 out of 5 stars Four Stars
Reviewed in the United States on 13 June 2016
Format: HardcoverVerified Purchase
Keep and open mind and this book will reward you with increased understanding
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motherrath
2.0 out of 5 stars Not for caregivers
Reviewed in the United States on 28 January 2017
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While some of the content was uplifting, this is not a good read if you are a care giver. The author's whole life is pretty depressing. I could not finish.
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Du Maurier
4.0 out of 5 stars Poignant, well. written. A must for careers ...
Reviewed in the United States on 25 April 2016
Format: HardcoverVerified Purchase
Poignant, well.written. A must for careers and the general public!
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J. Stein
5.0 out of 5 stars Wonderfully moving account
Reviewed in the United States on 28 January 2021
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This is a wonderfully moving account of what it means to be a caregiver for someone with dementia.
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J Mooney Jr
2.0 out of 5 stars Not my cup of tea
Reviewed in the United States on 2 May 2017
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I found her writing difficult to stay with. It was about her feeling sorry for herself and less about the journey.
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Enid S. Hernandez
5.0 out of 5 stars LOVE
Reviewed in the United States on 29 July 2021
Format: PaperbackVerified Purchase
“…like a bird , head cricked, watches and listens for worms.” LOVE
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Grace Stuart
2.0 out of 5 stars Boring
Reviewed in the United States on 14 October 2016
Format: HardcoverVerified Purchase
boring -tedious
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Unknown
5.0 out of 5 stars The Long Hello
Reviewed in the United States on 24 January 2017
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Easy to read. Kept me interested and finished in one sitting.
Respectful, peaceful. Brings out the reality in this awful disease.
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Frugal
1.0 out of 5 stars Just say NO!
Reviewed in the United States on 3 March 2017
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Author jumps around to this, that and the other. Boring. Hard to follow.
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Linda S. Burhans
5.0 out of 5 stars love this book
Reviewed in the United States on 15 May 2016
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This book touched my heart and brought tears to my eyes. Brought back many memories of my own mom Jo.
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KimK
5.0 out of 5 stars It's a Good One
Reviewed in the United States on 5 February 2017
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Great book and a must read for anyone who has ever been in a caretaker role
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Donna Boyle
5.0 out of 5 stars Caring for a loved one with Alzheimer's
Reviewed in the United States on 20 February 2015
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I went through the same with my mother - amazing how similar are experiences were including the tattoo !
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Barb
5.0 out of 5 stars Wonderful read
Reviewed in the United States on 1 January 2017
Format: HardcoverVerified Purchase
One of the best books I've ever read.
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Caroline
629 reviews
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August 6, 2019
This short book may not be entirely what you expect. Therefore there will be parts of it that may not do anything for you. Because I have a mother who is advancing in dementia, I was most engaged by the transcriptions of conversations she had with her mother - the confusion, the increasing presence of 'word salad' were quite familiar. Because I am NOT providing care to my mother, I also felt guilty that I wasn't doing for my mother what she did for hers, but at the same time it clearly ate her alive and I don't think I could survive that. I was less interested in the background about her childhood, her older brother, how she's tried to make a life and career for herself, although it did serve to make sense of conversations with her mother. I found the book worthwhile as a snapshot of a mind failing into dementia.

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Bryan
316 reviews

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April 4, 2021
While some have panned it because of the back and forth and difficulty following, this is a poignant story of a person losing their mother, not just once, but two times. The chaos of the timeline is all too familiar to anyone who has cared for a person with Alzheimer’s. Not just visitors, but spent many hours in a day and over the course of years. What was striking to me is maybe the author is attempting to come to terms with her own life; the guilt, loss of a childhood, her brother, etc. is so telling. A good read but much different than expected.

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Dani Chavez ♥
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January 8, 2026
This book is sweet and short and details the end of life care of the author's mother. This book reminded me of the end of life care of my grandmother, who would say and do similar things. This book is a sweet dedication to the author's mother, and narrates the bittersweet-ness of end of life care and dementia: the highs and the lows. I really enjoyed this read, and I think those who have gone through/witness a similar scenario would enjoy this.

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Jesse Ballenger
80 reviews
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April 19, 2021
This might be the only dementia caregiver narrative I've read that I would recommend as just an excellent book for any reader.
audiobooks

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Lisa Weldy
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September 7, 2022
3.75 rounded up

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Displaying 1 - 5 of 5 reviews
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캐시 보리의 <긴 인사: 기억, 나의 어머니, 그리고 나> 요약과 평론

1. 도서 개요 및 저자 소개

<긴 인사: 기억, 나의 어머니, 그리고 나>는 간호사이자 공중보건학 석사, 그리고 법학 학위까지 취득한 독특한 이력의 저자 캐시 보리(Cathie Borrie)가 알츠하이머병을 앓는 어머니를 7년 동안 돌본 경험을 담아낸 회고록이다. 저자는 밴쿠버에서 간호사로 훈련받았으며 존스홉킨스 대학교에서 공중보건학 석사를 마쳤고, 크리에이티브 라이팅(문예창작)을 공부한 문학적 소양을 바탕으로 이 책을 집필하였다. 2015년에 처음 출간된 이 책은 단순한 간병 기록을 넘어 질병이 인간의 언어와 관계를 어떻게 재구성하는지를 시적으로 추적하여 학계와 평단의 찬사를 받았다.

2. 내용 요약

저자 캐시 보리의 어머니는 알츠하이머 진단을 받고 점차 기억을 잃어간다. 그러나 보리는 어머니의 인지 능력 저하를 단순한 상실이나 작별의 과정으로 보지 않는다. 책의 제목인 <긴 인사(The Long Hello)>가 암시하듯, 저자는 어머니의 변화를 새로운 형태의 만남이자 끊임없는 환대의 과정으로 받아들인다.

책은 크게 세 가지 축으로 구성된다. 첫째는 저자가 어머니와 실제로 나눈 짧은 대화의 녹음 기록이다. 둘째는 7년간의 고단한 간병 생활 속에서 저자가 겪은 정서적, 육체적 고뇌의 기록이다. 셋째는 어머니의 기억 속에 파편적으로 남아 있는 가족의 과거사에 대한 회상이다.

어머니는 친부의 알코올 중독, 형제의 이른 죽음, 이혼, 그리고 의붓아버지의 냉대 속에서 가족을 부양했던 강인한 존재였다. 그러나 알츠하이머가 진행되면서 어머니의 언어는 문법과 사회적 규범의 틀을 벗어나기 시작한다. 보리는 이러한 어머니의 자유연상과 독특한 말의 리듬에서 기묘한 시성과 지혜를 발견한다. 문법적으로는 해체되었으나 감정적으로는 지극히 솔직한 어머니의 단어들은 두 사람 사이에 새로운 소통의 통로를 열어준다.

간병의 과정이 늘 아름다웠던 것은 아니다. 저자는 외부 세계의 삶과 간병인으로서의 책임 사이에서 균형을 잡기 위해 처절하게 투쟁한다. 슬픔, 절망, 때로는 참을 수 없는 분노와 같은 어두운 감정들도 가감 없이 드러난다. 그러나 보리는 과거의 어머니 모습을 고집하기보다, 현재 변화하고 있는 어머니의 춤사위에 맞춰 자신의 스텝을 바꾸는 법을 배운다. 결국 이 책은 기억이 사라진 자리에서도 여전히 작동하는 인간의 상상력과, 육체의 쇠락 속에서도 지속되는 사랑의 영속성을 증명하며 마무리된다.

3. 심층 평론

첫째, 질병을 바라보는 패러다임의 전환

전통적인 치매 서사는 대개 환자가 정체성을 잃어가는 상실의 비극이나 간병인의 희생 스토리에 초점을 맞춘다. 그러나 <긴 인사>는 알츠하이머를 완전한 종말이 아닌, 관계의 형태가 전이되는 과정으로 재정의한다. 보리는 질병을 <작별(Goodbye)>의 연장이 아닌 <새로운 안녕(Hello)>의 시작으로 접근한다. 이러한 시각은 환자의 망상이나 반복적 언어를 교정해야 할 오류가 아니라, 그들이 거주하는 새로운 현실로 인정하고 그 세계 속으로 함께 걸어 들어가야 한다는 현대 존엄 케어의 핵심 가치와 맞닿아 있다.

둘째, 언어의 해체가 가져온 시적 구원

이 책의 가장 독창적인 문학적 성취는 어머니의 <조각난 언어>를 예술적 텍스트로 승화시킨 점에 있다. 알츠하이머 환자의 언어는 이성과 논리의 검열을 거치지 않기에 때로 극도로 솔직하고 직관적이다. 임종 무렵 기침으로 고통받는 어머니에게 저자가 가슴을 만지며 "그 안에 자비가 충분히 있나요?"라고 묻자 어머니가 "응, 엄마"라고 대답하는 대목은 이 책이 도달한 정서적 깊이를 보여주는 단적인 예다. 논리적 인과관계가 무너진 자리에서 피어난 자유연상과 은유는 그 자체로 한 편의 아름다운 시가 되며, 인간의 정신이 마지막 순간까지 창의성을 잃지 않는다는 역설을 보여준다.

셋째, 솔직한 내면 고백과 간병의 현실성

보리는 자신을 성인(聖人)처럼 묘사하지 않는다. 간병이라는 거대한 무게감 아래서 한 인간이 느끼는 고립감과 자아의 상실을 서슴없이 고백한다. 독자는 저자의 예술적이고 시적인 서술 속에서도 간병인이 겪는 물질적, 정신적 한계를 명확하게 읽어낼 수 있다. 이러한 입체적인 서술은 책의 감상주의적 흐름을 차단하고, 돌봄 노동이 지닌 숭고함과 잔혹함이라는 양면성을 균형 있게 전달하는 역할을 한다.

총평

캐시 보리의 <긴 인사>는 치매라는 비극적 소재를 다루면서도 종국에는 독자에게 기쁨과 연민의 감정을 남기는 기적적인 회고록이다. 저자는 기억의 소멸 속에서도 인간의 존재적 가치는 결코 훼손되지 않음을 어머니와의 대화를 통해 증명해 냈다. 이 책은 치매 환자를 둔 가족들에게는 깊은 위로의 서이자, 보건의료 전문가들에게는 치매 환자와 소통하는 법을 알려주는 철학적 지침서이며, 일반 독자들에게는 기억과 정체성, 그리고 사랑의 본질이 무엇인지 묻는 뛰어난 문학 작품이다. 질병의 고통 속에서도 인간성이 어떻게 빛날 수 있는지를 보여준 이 서사는 시대를 초월한 감동을 선비한다.


===

《The Long Hello: Memory, My Mother, and Me》

캐시 보리(Cathie Borrie) 지음

※ 먼저 한 가지 정정할 점이 있다. 앞서 소개한 《The Long Hello》는 루이소체치매(LBD) 배우자 간병기가 아니라, 캐나다 작가 캐시 보리가 자신의 어머니가 알츠하이머병에 걸린 이후의 경험을 기록한 회고록이다. 그럼에도 치매 가족의 경험을 다룬 뛰어난 문학적 기록으로 평가받으며, LBD 가족들도 많이 읽는다.


요약

《The Long Hello》는 치매에 관한 의학서도, 간병 지침서도 아니다. 그것은 딸이 어머니를 잃어가는 과정을 기록한 회고록이며, 동시에 기억과 정체성, 사랑과 상실에 관한 깊은 성찰이다.

책의 제목인 "긴 인사(Long Hello)"는 치매 환자와 가족이 겪는 독특한 시간을 상징한다. 일반적인 죽음은 작별(goodbye)이라는 형태를 취한다. 그러나 치매는 오랫동안 계속되는 헤어짐이다. 육체는 살아 있으나 기억과 인격이 조금씩 멀어져 간다. 가족은 매일 조금씩 작별을 경험하지만 완전히 떠나보낼 수도 없다. 그래서 저자는 이를 "긴 작별(Long Goodbye)"가 아니라 "긴 인사(Long Hello)"라고 부른다. 어머니는 계속 곁에 있으면서도 계속 낯선 사람이 되어가기 때문이다.

저자의 어머니는 원래 활발하고 독립적이며 유머 감각이 풍부한 여성이었다. 가족과 친구들을 아끼고 사회활동도 활발히 하던 인물이었다. 그러나 점차 사소한 기억력 저하가 나타난다.

처음에는 열쇠를 잃어버리고 약속을 잊어버리는 정도다. 가족들도 나이 탓으로 생각한다. 하지만 시간이 지나면서 실수가 반복되고 일상생활이 어려워진다. 결국 알츠하이머병 진단을 받는다.

진단 이후 가족의 삶은 완전히 바뀐다.

어머니는 점차 자신이 누구인지, 주변 사람들이 누구인지 혼란스러워한다. 과거와 현재를 구분하지 못한다. 이미 세상을 떠난 친척을 살아 있는 사람처럼 이야기한다. 오래전 기억은 비교적 남아 있지만 최근 기억은 빠르게 사라진다.

저자는 특히 "기억이 사라지는 것" 자체보다 "관계가 변하는 것"에 더 큰 충격을 받는다.

어머니는 딸을 알아보기도 하고 못 알아보기도 한다. 어느 날은 친근하게 웃으며 대화하지만 다음 날에는 완전히 낯선 사람처럼 대한다. 저자는 그 변화에 적응하려고 노력하지만 매번 상처를 받는다.

치매는 단순한 기억상실이 아니라 가족관계의 재편이다.

어머니가 더 이상 보호자가 아니라 보호받는 존재가 되면서 딸은 부모 역할을 맡게 된다. 이 역전은 자연스럽게 이루어지지 않는다. 저자는 죄책감과 분노, 슬픔 사이를 오간다.

어머니를 돌보는 과정에서 가족 내부의 갈등도 발생한다.

형제자매들은 같은 병을 전혀 다르게 받아들인다. 누군가는 현실을 직시하려 하고, 누군가는 부정하려 한다. 돌봄의 부담은 고르게 분배되지 않는다. 간병을 더 많이 담당하는 사람은 피로와 원망을 느끼게 된다.

저자는 치매 환자를 시설에 보내야 하는 순간도 기록한다.

많은 가족이 그렇듯 시설 입소는 실패나 배신처럼 느껴진다. 그러나 결국 가족의 사랑만으로 해결할 수 없는 단계가 온다. 전문 돌봄이 필요해진다.

시설 생활 이후에도 어려움은 계속된다.

어머니는 새로운 환경에 적응하지 못한다. 혼란스러워한다. 때로는 불안해하고 화를 낸다. 그러나 시간이 지나면서 또 다른 형태의 일상이 형성된다.

저자는 자주 어머니를 방문한다.

방문할 때마다 "예전 어머니"를 찾고 싶어 하지만 점차 그것이 불가능함을 받아들인다.

책의 후반부로 갈수록 중요한 변화가 나타난다.

저자는 더 이상 과거의 어머니를 되찾으려 하지 않는다.

대신 현재의 어머니를 만나기 시작한다.

어머니가 자신을 기억하지 못해도 웃음은 남아 있다. 음악을 좋아하는 취향도 남아 있다. 손을 잡아주는 따뜻함도 남아 있다.

기억은 사라지지만 인간 자체가 완전히 사라지는 것은 아니라는 사실을 저자는 깨닫는다.

결국 이 책은 치매를 이겨내는 이야기라기보다 치매와 함께 살아가는 이야기이다.

병은 계속 진행된다.

기적적인 회복은 없다.

그러나 사랑과 관계는 예상치 못한 방식으로 지속된다.

저자는 어머니의 죽음을 기록하면서도 단순한 비극으로 끝맺지 않는다.

그녀는 치매가 자신에게서 많은 것을 빼앗아 갔지만, 동시에 인간 존재와 사랑에 대해 새로운 통찰을 주었다고 말한다.


평론

《The Long Hello》의 가장 큰 장점은 치매를 의학적 사건이 아니라 관계적 사건으로 묘사한다는 점이다.

많은 치매 책은 증상과 치료법을 중심으로 전개된다.

그러나 캐시 보리는 가족이 실제로 경험하는 감정을 전면에 내세운다.

독자는 진단명보다도 "딸이 어머니를 잃어가는 경험"에 집중하게 된다.

이 책이 특별한 이유는 치매 환자를 단순한 피해자로 그리지 않기 때문이다.

저자는 어머니가 기억을 잃어가더라도 여전히 인간으로서의 존엄과 개성을 유지한다고 본다.

이는 현대 치매 돌봄 철학의 핵심과도 연결된다.

최근 치매 연구에서는 환자의 결손보다 남아 있는 능력과 감정을 중시한다. 이 책은 그런 관점을 문학적으로 구현한다.

또 하나 인상적인 점은 저자의 솔직함이다.

그녀는 자신을 성인군자로 묘사하지 않는다.

화도 낸다.

지친다.

도망치고 싶어진다.

어머니가 같은 질문을 반복할 때 짜증도 난다.

그러나 바로 그 솔직함 때문에 독자는 깊이 공감하게 된다.

실제 간병은 아름다운 희생만으로 이루어지지 않는다.

사랑과 피로가 동시에 존재한다.

이 책은 그 모순을 숨기지 않는다.

세진님의 상황과 비교해 보면 흥미로운 차이도 있다.

정순님의 경우는 루이소체치매이므로 환시와 망상, 인지 변동이 핵심 증상이다. 반면 《The Long Hello》의 알츠하이머병은 기억력 저하가 중심이다.

따라서 구체적인 증상은 상당히 다르다.

그러나 가족이 겪는 감정은 놀라울 정도로 비슷하다.

"오늘은 나를 알아보는데 내일은 모른다."

"같은 사람인데 예전 사람 같지 않다."

"사랑하지만 지친다."

"살아 있는데 이미 잃어버린 것 같다."

이러한 감정은 치매 유형을 초월해 공통적으로 나타난다.

특히 현재 정순님이 겉보기에는 비교적 정상적으로 보이지만 집 안에서는 여러 사람을 보고, 물건을 잃어버리고, 도난을 의심하는 모습을 보인다는 점을 생각하면 세진님도 일종의 "긴 인사"를 경험하고 있다고 할 수 있다.

배우자는 여전히 곁에 있다.

함께 식사하고 산책도 한다.

그러나 동시에 과거의 배우자는 조금씩 멀어지고 있다.

《The Long Hello》는 바로 그 모순된 현실을 가장 아름답고도 현실적으로 묘사한 치매 회고록 가운데 하나다.

결국 이 책의 핵심 메시지는 단순하다.

치매는 기억을 빼앗을 수 있다.

그러나 인간관계의 의미까지 완전히 없애지는 못한다.

남아 있는 시간을 어떻게 함께 살아갈 것인가.

《The Long Hello》는 그 질문에 대한 조용하고도 깊은 성찰이다.


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